Tuesday, July 17, 2012

A Note to Maria

Maria,

Today my thoughts are with you.  Your hopes and dreams.  Your smile as I saw you work on your challenges.  Your beautiful family.  When I saw my youngest son today, I thought of your son, the same age and I gave mine a hug.  We have 3 children the same ages.  They are just starting out in life and I know you looked forward to being with them through each stage of their lives.  I know you are with them and will always be there.  It is amazing how spending less then 3 weeks of my life in your company has effected me.  I know you were in pain but you smiled.  You stayed with me while I waited for my ride.  You laughed and shared with me.   I wish I could have been there for you more than I was.  I wish I could do something to comfort your children, husband and family.  Those in your family I met were great people.  I know they will always be there for your children and each other.  That's a comfort I know you had.  I'm thinking about and praying for your family-especially your 3 boys.   I will not forget you.

Your Friend
Jean


Today is a hard day-I'm very sad.  I lost a friend that I feel I just met.  Her birthday was the day before mine and we shared children of the same ages.  I'm still off of everything and my labs are back but the doctor has not released them to me.  That's never a good sign.  She has not called either so it must not be that bad.  The only thing I am doing is diet, juicing and raw foods.  I'm truly questioning the chemo.  I didn't have much but it has messed up my body so I'm not sure if I want to go back on it.  There are a lot of supplements I can go back on and of course the diet.  I think today is a good day to reflect, to plan and to prepare.  No one knows what tomorrow will bring.  So we smile and move forward.  Yes, sometimes we cry a little.  So I guess today we should all hug our loved ones and tell them "I Love You".

Saturday, July 14, 2012

Life At Home

Who am I!
Cancer does not define who I am!  But I think some people think it does, so I want you to know I am still a mother, sister, daughter, wife.  I still hike, read lots of books, hate house work, love my garden and yard.  I had to take a break from lots of fun rewarding things I like to do, some by choice and others because it was felt I needed to focus on myself and my family.  Since I have more time, I am making some fun baby blankets, learning to crochet little baby girl shoes, making goodies for others because I can't eat them.  And I still have lots of kids and teens at my house.  So when you see me, I hope you truly see me and not the cancer--as I said it may be a part of my life, but it in no way defines who I am!

My life on low dose Xeloda
I am supposed to spend the next 3 months on a low dose chemo called Xeloda.  I take it for seven days and then off for seven days.  I also take all my supplements and natural remedies with my diet plan.  My dose is very low--500 milligrams 3 times a day.  Most patients are on about 2000 milligrams twice a day or higher.  Some are 7 days on and 7 days off while others are 14 days on and 7 days off.  There are lots of side effects with Xeloda including swollen soles of feet and palms of hands. Because my dose is so low, no side effects are expected beside being a little fatigued.

1st week on Xeloda
The first two days I became very nauseous.  By day three I became very ill and could not keep anything down.  I spent lots of time over the toilet bowl.  I was encouraged by my friends to call the doctor.  I finally did and he ordered me some anti-nausia medication.  That helped a lot and I continued on my chemo and supplements.

Blood work
Every other week I have to go have blood work done.  When I took my first test, my cancer markers had improved but my liver function had become very bad.  My doctor ordered a liver panel.  I decided that I would do what I could to help heal my liver--we can't get better if our liver does not work.

What I did

  • I added Milk Thistle seed to my diet.  It has been shown to be beneficial in helping to repair the liver.  It is also helpful with malaria and cancer. Here is a link about milk thistle: http://www.cancer.gov/cancertopics/pdq/cam/milkthistle/Patient/page2 It is however controversial for cancer patients, and from what I have read it is best to just use the seeds if you have cancer.  
My doctor also told me to take:




So I added theses supplements and my liver function has improved.

2nd week on Xeloda
Things went better and I was able to take all my supplements and not feel sick.  On day five I noticed small spots like freckles all over my body--they blended in where I had freckles.  They range in color from bright red to purple and brown.  What are they?  First I thought liver spots, but no, liver spots are not caused by the liver.  What I found is that they looked like petechiae  http://www.primehealthchannel.com/petechiae-petechia.html, bleeding under the skin caused by miner hemorrhage.  The small spots are called petechiae, and the larger spot in this photo is called purpura; I don't have any purpura spots.
Petechiae pictures
I called my oncologest and emailed my doctor.  I must add, I felt fine in every way.  My oncologest felt that I was haveing an alergic reaction and had me stop chemo and supplements.  He told me to take large amounts of benadryl and vitamin C.  My doctor had me come in and after she looked at the spots orderd lots of labs stat!  She said it is petechiae.  We just need to find out what is the cause and deal with it.  There are many causes such as an allergic reaction to medication or taking too much ibeprofan.  It can also be caused by an infection.  Most likely for me it's a low platelet count due to the chemo.  It can be hard to have your oncologist in another state.  But I do have a very good doctor here that is willing to run tests and work with me and my oncologist.

So what do I do now?  I have to just wait and see how my labs turn out on Monday.  I will try to keep you informed.

For my friends on Xeloda
Your experience will be unique.  Only 35% to 40% of patients have nausea and vomiting.  Petechiae is also something not everyone has when on chemo.  If you go to  http://www.breastcancer.org/  there are several groups in the community link that are talking about Xeloda and you can get a good idea of what is happening to others who are taking this form of chemo.  Most of them are on a high doses.  Some have been on it for years.  They will also be happy to answer your questions.  As for me, I'm not sure if I will be back on Xeloda, or what I will be doing to keep up the fight.

Wednesday, July 4, 2012

There and Back Again



There and Back Again like Bilbo Baggins

I left my shire (Sacramento) and set off on my adventure in Reno to fight my dragons and face my trolls.   Yes, I am talking about cancer.  I've been there and now I'm back again and here is my tale.

I Don't Belive Anyone Causes Themselves To Get Cancer!
One of the things I have heard is that we somehow, through stress, get cancer!  I don't belive it at all.  Being a psychology major in college, I know how the mind can effect the body.  In one case study, a man came home early and discovered his wife with someone else.  His retinas detached, and he was blind.  In the process of trying to heal him, his wife left her lover, and he became the center of attention.  His retinas reattached and he could see again.  (short version of the story) I know that how we feel and handle our challenges, health or otherwise will effect our bodies.  It will help us along the healing process if we have a positive attitude. If we are always stressed out and upset our bodies will let us know through our health such as ulcers and other problems.  But I believe that while it may cause our cancer to grow faster, cancer starts with an exposure or a defect in our system.  How we handle the situation is what counts.

Mind Over Matter and a Higher Power.
I had a friend who was an alcoholic.  He didn't belive in God but needed a higher power to be able to overcome his addiction.  He said at first the beer can was so much more powerful than him, that he set an empty one in frount of himself and talked to it.  It was his higher power for awhile until he was able to see that there was a much higher power than an empty beer can.  I think that we can't fight any challenge that we face, be it physical, mental, or spiritual without reaching out to a higher power.  Our mind is of itself a powerful force where our body is concerned, but we need more than that.  I happen to believe that there is a God out there that loves us and is mindful of us.  Sometimes I think that this challenge I'm facing was meant to make me stronger and to rely on Him more.  I think that after it's all said and done, attitude goes a long way.   Nothing is so sad to me than to see someone give up and give in to this disease.  So as I have said before, prayers are very welcome--no matter how you pray.

Positive Thinking Has Its Limit!
If I could have used positive thinking to make my veins cooperate, I wouldn't have had to get a pic line.  My veins had other ideas and just said no way are you going to poke me again. So I had to put my body in the hands of some very well trained doctors and submit to my limitations.  However, if I had it to do again, I would have just started with a pic line.  It worked great and was easy to remove at the end of the three weeks.

About My Treatments In Reno.
I had 3 weeks of interveinous therapy.  It involved 2 days a week of low dose chemo with insulin.  The other 3 days were interspersed with immune therapy, oxygen therapy, and vitamin therapy.  I also began a regimen of vitamins, herbs, and other supplements that were shown through testing to work against my cancer.  I began using a bio-mat to sleep on, and learned some new ideas to add to my growing list of treatment options.  I didn't lose my hair since it was low dose, and I felt great most days, with the exception of the immune therapy--that gave me an upset stomach!  And I had one weekend that I felt sick, but it resolved itself.

The Fellowship In The Room.  They are Best Therapy Group!
One of the things I liked most about my time in Reno were the wonderful people that I met.  They have inspired me, given me new ideas, and increased my will to fight this thing!   The people I met were varied in age, types of cancer, stage, and also whether they had regular treatments or were just starting out.  The one thing they all had in common, was an open mind to new treatment options.  Most have lived very healthy life styles, and I can see no reason for them to be going through what we are.  I would say this could happen to anyone, and again, knowledge is power.  I will miss talking to them every day--they still inspire me!

Sharing The Treasure of New Information.
One of the things I learned about was the Budwig protocol.  As we, the patients, were talking about it, one of the nurses leaned over and whispered to me "You should try this--the breast cancer patients we have that do it, do very well."  I say it can't hurt, even if it's adding some dairy back into my diet.  The following link is about Dr. Budwig and her protocol, which involves mixing cottage cheese with flax seed oil in order to make the oil water soluble and easily absorbed into your cells.  http://www.healingcancernaturally.com/budwig_protocol.html

For the first 2 weeks I was mixing it up all wrong.  This video http://www.youtube.com/watch?v=RSoddptWL0s  shows you how to mix the basic recipe, and it is very good, but I add a little sweetener (xylitol http://www.xylitol.org/questions-about-xylitol).
I also think you could mix it with some onion and garlic and make a nice vegetable dip.

My Bio-mat was prescribed for me.  It helps with pain (that I don't have, thank goodness) and it also helps to break up cancer cells in the body.  It is used for detoxification. (Some oncologists believe that a person with cancer is too sick to detox safely; I say we must detoxify.)  It also gives off negative Ions.  They are great for us!  To learn more about Bio-mats click this link.  http://www.bio-mats.com/

Negative Ions are very important to our health.  Because of their health benefits, I would say they should be called Positive Ions, but Benjamin Franklin dubbed them Negative, and it stuck.  The good feeling you get when you walk by a waterfall or open a window in a stuffy room after a nice rain storm is caused by negative ions.  They clean and freshen the air.  They help dust drop out of the air and get rid of bad smells.  Here is a link if you want to know more about them and their health benefits.  http://www.peakpureair.com/effects-negative-ions  I have to say that this site gives good information, but I'm not saying to go buy or not to buy an air filter.  There are many plug in ionizors you can get at places like Amazon.

Coffee cleanses are something else I have learned about.  They are controversial and some doctors go out of their way to discourage them.  But before you turn away from the idea of a coffee cleanse or enema read about Dr. Gonzoles of New York  http://en.wikipedia.org/wiki/Nicholas_Gonzalez_(physician).  He is the only doctor who has had sucess treating pancreatic cancer.  His sucess is such that there is now a study underway to try to duplicate his results.  Pancreatic cancer is one of the most deadly types a person can get.  His patients live for many years, long past the expected time frame.  His patients not only live, but they enjoy life and are active.  He uses enzime therapy along with diet and coffee enemas.  The enzime my husband found that most closly matched his is called Zymactive
  http://www.amazon.com/s/?ie=UTF8&keywords=zymactive+double+strength&tag=googhydr- and I'm taking it.

 If I'm to detox and get rid of the cancer, it is very important that my liver, pancreas and intestines (whole digestive system) are working properly.  The coffee cleanse may sound unpleasant--but it's not that bad, and worth the time if it can help.  Gerson theropy also uses the coffee enemas.  The following link will give you further information about coffee enemas and how they are done.  They also sell the organic coffee that is grown for this purpose.  http://www.sawilsons.com/basicenema.htm

DCA is another wonder drug that is in clinical trials at this time.  They have just completed a study of breast cancer and DCA, but they have not posted the results yet.  It is hard to find, but was shown to be positive in killing my cancer in my immunity test.  It has been shown to shrink tumors very rapidly.  However, it is not somthing that my doctor has access to, so I went out and found it so that I can take it.  I did tell the doctor I was taking it and he saw no problem with it.  Here is the link if you are at all interested in learning more.  http://www.thedcasite.com/   Or a video at  http://www.youtube.com/watch?v=3KkZtrlc19s&feature=related

I also wanted to tell you a little about Artemisia anna.  It was also shown to help kill my cancer, but I have learned that it is somthing some oncolgest use but others do not.   Why they don't use it, I can't say, but it kills the cancer cells that are resistent to chemo with no affect on healthy cells.  It has been studied and shown to be useful for cancer patients. The pharmaceuticals have also pattened a component of Artmeisia as a chemotherapeutic drug.  It is used to kill parasites and to treat malaria.  The following article talks about the studies done with Artemisia anna and how it works by reacting to iron which cancer cells are abundant with. http://www.denvernaturopathic.com/news/artemisia.html


How I'm Doing now that I'm back again.
I'm home now, and it feels great to be here.  The first thing I did was take my children to the pool.  I was there for about 2 hours and boy did I pay!  I didn't realize that I would be photosensitive days and even weeks after I had chemo.  I burned like crazy, and it didn't stop getting worse for 2 days.  I used everything I knew to stop it, but it kept getting worse.  Now I am peeling but have learned a valuable lesson--stay out of the sun until about December when I have been off chemo for 2 months.

Right now I'm having a low dose oral chemo seven days on and then seven days off.  I had a rough start with lots of nausea and vomiting, but after admitting to the fact that I needed help, I called the doctor.  He prescribed an anti-nausea medication and now I'm feeling good again.  Lesson learned again! Call for help when needed.  So I'm mostly back to normal, if you can call about 30 pills a day normal.  I feel great and have learned how to manage my care and still go out.  So if you see a lady wearing long sleeves, pants, sunglasses, and a big floppy hat, don't laugh at her, just come say hello, because chances are it's me out trying to enjoy the sun with my family!

Thanks For The TLC!
I just wanted to give a note of thanks to all of you who have taken care of my family for me while I was gone.  They ate like kings and queens and made it to all of their activities.  Thanks to those who helped with my accommodations in Reno! Thanks to those who came to visit me and keep me company in Reno--it was GREAT!  I have been richly blessed with so many wonderful people in my life!